Katya just got her AFOs last week. The guy showed me how to put them on her and I am pretty sure I am doing it right, but foot keeps sneaking up out of it a little bit (her heel lifts up) and then it hurts her. I think maybe I am not tightening the strap enough but I don't want to end blood flow to her feet lol Is this maybe a sign that we need to stretch more or mom is just not hooking the strap well enough? Her left foot is very tight. So much so that I have to have her lay on her back so I can flex her foot enough to get it flat and fit in the AFO. She tries to help by pushing her foot in and down. I am pretty confident we're getting it on, its just riding up especially when she crawls and the toes of her shoes are dragging a bit more than if she was walking.
While we're on the subject of stretching, I'd like to mention I HATE it. Katya hates it. We're supposed to stretch with her 3 times a day and she absolutely hates it. She tenses up and screams so that I don't know if there is even a point to stretching because she just fights the whole time and how can you stretch if you fight it? Some days she is fine. We play music and she'll sing and help stretch. Yesterday she even ASKED me to stretch. Most of the time though, its a fight. I mention it and she starts crying. Some days I feel like we've gotten set back with our bonding a whole month just from one day of stretching, but if we don't do it, she'll be back to a stiff little board like she was when we met her. UGH. Bottom line: We need to get therapy set up at least one day a week with someone other than mom and dad! I'm sending a certified letter to the school tomorrow. I have tried several other ways to get her evaluated and its all been a no go. Finally someone at the Kluge Childrens Rehab Center called around our county, and then told me exactly where, and to who I need to send a letter and what to say.
So other CP mommies, how many times a day do you stretch? How long do you stretch? We had a translator tell Katya that she has to stretch and wear her AFOs so she can learn to walk by herself. That seemed to help. She told him she liked to stretch! (umm not!) The therapist we saw seems to think that she was overstretched and is aprehensive about it happening again. I think that is probably the case, but we still have to do it. She tenses the moment you put a hand on her which makes getting anywhere with an actual relaxed muscle stretch very hard!
In other news, we bought pansies and tomatoes today for the kids to plant. Katya and the boys loved planting their own little tomato plant and Katya then helped me plant the pansies in flower pots. She was SO excited to help. I sniffed the flower and she said "ee ya!" (and me!) and practically inhaled it -haha! After we planted them all she sat on the steps and said (in Russian) "I love the flowers!" So cute!
Another result of finally having a translator at her last Dr. visit is that he told her that we had named her Mariah. We have been calling her Katya like they did at the orphanage but her legal name is Mariah. The translator told her this and asked her if she liked it. She said she did and now she tells me "Ya Mariah!" She will even answer to being called Mariah. I originally wanted to just call her Mariah but now she's been Katya for so long I have a hard time calling her anything else. We'll see where it goes but she seems to want to be Mariah...