On Friday Mariah has several appointments at Kluge Children's Rehab Center to more fully evaluate her CP. For some reason they want us to be 30 minutes early which will amount to me having to be on the road by 7:30am. Hah - Like doctors are ever on time much less early!
I have to take Wyatt along with Mariah and I for this full morning of evaluations so I'm hoping that he is really good, but doubting he will be since he is a COMPLETE BEAR when he has to get up early in the morning. I'm hoping for a good day and productive appointments... really I am. Early mornings are just not our thing (yet we always seem to end up with early morning appointments lol) and I've got to drop Wes off at a friend's house before I can get going on the road to Kluges. (yes I'm done whining now)
I've done some research on serial casting for kids who have CP and I'm hoping to ask some questions about that and botox because we've seen such improvement with Mariah that I think we really should try to work on stretching her heel cords and hamstrings out NOW to improve her gait. I suspect she has some orthopedic issues with her left ankle and possibly knee as well. The ankle just doesn't look quite right and I don't think she ever did enough weight bearing for it to be rickets. We shall see...
I'm also hoping to get a prescription for PT so we can start with a therapist. We finally had a stretching session today in which Mariah did not cry, fuss, scream, thrash, try to scratch herself, or push me away. She FINALLY seems to understand that she can just tell me when it hurts and where we need to hold the stretch. I think she actually understands now that we stretch so she can walk better. I realize we'll probably take 2 steps back from here, but the fact that we got here at all feels pretty darn good.
We've also put her back in underwear and started to try potty training again. She was potty trained when we met her, but once we came home she would ask to go pee every ten minutes only to wet herself 5 minutes later and just do very random things that completely baffled us so we regressed her into diapers for a while but we're back in the training pants now. I can't say I'm thrilled with how its going, however she does understand that she should not pee in her pants, but in the potty; and she HATES to wear wet pants around... so at some point this too shall pass. I'm trying to coax Wyatt into giving up the diapers as well but he insists that he LIKES to poop in his pants and he LIKES to be wet.
I also tried teaching Mariah the letter "A" today. Wow - she just didn't get it at all. I know we traced "Up down across" like 100 times. I hold her hand and say like this "Up down across about 10 times in a row. Now you do it." She has NO clue. Absolutely no clue what I am asking her to do. She repeats, "Up down across" yet just scribbles a little instead of making (or even attempting) an "A." Even Wyatt attempted the A and I haven't worked on letters with him before either. I was a little baffled at how she had no clue what we were doing. She is bright... but obviously had no exposure to working with writing letters (even Cryllic) or numbers or even coloring a picture. Really her hand eye coordination with a pen is about what you'd expect a 12 month old to have. She just scribbles. I've noticed she does some odd positioning when she tries to color or play with things on the floor. She lays her head down next to what she's playing with. I can't tell if its an eye issues because this is the same girl who spots fries in the freezer from 20 feet away at Food Lion, or if its just easier for her to sit that way. In any case, we'll be going to the opthamologist soon.
So that's the way things are around here!