Hoping to someday find M's brother adopted in the U.S. -
Myckola Oleksandrovych Markov - 8/26/2003

Wednesday, August 26, 2015

Dynamic Arm Brace

We are excited!!  M got an articulated arm brace today.  It will provide a continuous dynamic stretch for her affected arm.  It has settings on it to allow for the adjustment of the resistance, but she can bend her arm to use it while it's on which is awesome!



We had issues last year with teachers at school being angry at her for not using her right arm to do things like cut paper, but her old brace had a stay that immobilized her elbow and didn't allow her to bend her arm.  She would ask for help from a classmate then get clipped down.  We ended up just doing away with that brace at school since no one could seem to understand when it would be appropriate and helpful to remove it for her.  When it was removed, it was not put it back on properly.  This situation was frustrating for M and me!



We got the script for this new brace from her orthopedic doctor before school let out in May.  It would have fixed all of the issues we were having with the old brace (I think) but then again so has home schooling!


So we will just be the thrilled recipients of this new brace all by ourselves. Honestly I'm happy to have her home where I can monitor how it's working 24/7 and not have to wonder if someone is angry at her for being different or if it's hurting her because someone put it back on wrong.

Monday, August 24, 2015

Getting Started

We are starting to prep for school.  The kids helped me make activity packets today for geometric shapes, sight words, and coins.  I've installed educational games on our computers and we have checked out our limit of library books!

TeachersPayTeachers is an awesome website I found for special education resources.  It has a ton of resources for Dyslexic kids.  Now that I have time to actually focus on how to educate my kids I am finding so many resources immediately available.  Not just resources to help them, but resources for educators to identify and understand their disabilities!   It truly makes me wonder what on earth the staff was doing with my kids last year... But I'm trying to release the angry feelings.  

My efforts were completely wasted trying to work with and educate the school system about what my children needed.  Now that my mind is free to focus only on how to help my kids I feel like we can do this thing.  We might need to fundraise to afford everything we need, but we can do this thing!  






Sunday, August 23, 2015

Bonfire Fun

My kids are like little pyromaniacs. 

My little Wy thinks he's the Incredible Hulk.

They absolutely love cooking over a fire and honestly, at 9 months pregnant when they ask if they can eat outside, I'm like "Yes please. Here have some bread and hot dogs and kielbasa and apples and..."

M has been enjoying the apples we got last week. I think this is her 329th apple since Friday.

Ukrainian kids are just nuts about kielbasa (hot dogs).

V was obscenely dirty. I told him to just drink out of the spigot instead of going inside for a drink.



 

Thursday, August 20, 2015

Spur of the moment

One nice thing about having the kids at home instead of at school (while I'm also at school stuck in IEP meetings) is I can wake up and be like... 
Today I want donuts. 
"Hey kids if you clean up, I'll take you to Dunkin!" 



And then we can decide to stop at an orchard on the way home to pick 20lbs of apples because I care about what they eat...



             Yes. They will eat them all.


Because life is just more fun when you get out and experience it.  

(I may also have been trying to get myself to go into labor because it's that time!)





Not Back to School

School started last week for our county.  
This was my kids on the first day.



And the next day.


Then they went camping outside and stayed up very late around their campfire.


Apparently they need some structured time soon because this happened.


But it's still August and while we have done some #notbacktoschool educational activities like origami, drawing lessons, and worked on lots of reading....it's still summer and we are enjoying being NOT back to school.
(because the last two years of it have been many levels of hell!)

Now if I want to listen to someone make promises they won't keep, I listen to the presidential candidates.  









Sunday, August 16, 2015

Follow up with the hand surgeon

D had his final follow up with the hand surgeon Friday.  Thankfully his X-rays looked great.  We can clearly see where the bone was broken and twisted, but his body is filling in where it needs to on the bottom and removing bone from the top so eventually as he grows, it will all straighten out.  They tested his range of movement and hand grip strength.  Fortunately he has healed very well and his hand is just fine.  

He was actually quite worried they might tell him that his hand was not ok and put him back in a cast!




Thursday, August 13, 2015

How to feed a crowd for cheap


That's a pot of noodles and cabbage right there ya'll.  My kids love this stuff.  They act like I've delivered mana from heaven.  This entire pot will be gone at dinner's end.

It's an entire head of cabbage sautéed in bacon mixed with two boxes of spaghetti noodles and half a stick of butter. We also love garlic salt.

Bam. Dinner for a crowd.

Saturday, August 1, 2015

PT

M is working on riding a bike at PT


I have been trying to teach M how to swim this summer and she finally can!  Seriously it's amazing what she can do sometimes.  I never assume she can't so something. Ever.  But when she needs to breathe she stops and sinks!  So we were working on her stroke AND breathing at PT in this stretchy fabric.  But...the fabric slipped and she fell out.  Whoops!


Today she noticed her shoe was untied so she stopped and re-tied it. I was like whaaaaat!?  Before she had SPML surgery she couldn't even tie her shoes sitting down.  Seriously cool :)





We witness a miracle every time a child enters into life; but those who make their journey home across time and miles, growing within the hearts of those who wait to love them,are carried on the wings of destiny; and placed among us by God's very own hands. --Kristi Larson

 

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