Hoping to someday find M's brother adopted in the U.S. -
Myckola Oleksandrovych Markov - 8/26/2003

Friday, May 19, 2017

Ella Grace

My friend Karrie and her husband are adopting a little girl from Eastern Europe with a genetic skin condition. They're currently fundraising to cover the adoption fees and medical supplies necessary to go get Ella Grace. I'm challenging my blog readers and everyone on my friend's list to donate to their fund. 

I'm matching every dollar donated this week (5/20 - 5/27) up to $500.

Karrie helped us spread the word on Facebook and challenged her friends to donate to us so we could bring our boys home over 3 years ago. I appreciated her support so much at the time, and have never forgotten what it felt like to have a friend so solidly in our corner. 

Help me give back just a little and give a little girl a family. Ella desperately needs to come home where her new family can properly care for her skin. She has EB which causes blisters and wounds on her skin from the slightest friction and touch. Karrie and her family have a biological daughter with EB and two boys with EB whom they adopted from Ukraine.



Monday, May 1, 2017

Backflip

Check out M doing a backflip at gymnastics!

Last weeks was also her third anniversary of SPML surgery with Dr. Nuzzo in NJ! 

Wednesday, April 26, 2017

LEGO!

My boys love to build their own LEGO creations. We submitted the best one to the official LEGO site and it was approved! If it gets enough votes, it will be considered for production.  

The boys are so excited with each vote it receives.

The Wash Plant needs 80 more votes in the next 40 days in order to earn more time to reach the 10,000 votes it needs to be considered.


VOTE HERE

(You will need to make a LEGO profile)

 

Thursday, April 20, 2017

Adaptive Bike!

I applied for a grant to get M an adaptive bike. She was approved a few weeks ago and her bike arrived last week! 

She has been SO excited to ride. Words cannot express how much she loves this bike or how thankfuk we are to Wheels On The James for providing the grant!

 

Sunday, February 26, 2017

SMOs for Ballet

M has carbon fiber AFOs with a chipmunk insert.


She does ballet and gymnastics and complains of foot pain and her legs being really tired when she goes barefoot. 

So we had an appointment to discuss options for balerinas and gymnasts.

 
 


We are going to try an SMO or custom lift so she can have more freedom of movement without sacrificing good foot support.

M is so determined! As her mama I am determined to help her do whatever it is she is determine to do!

 

 

 

 

If you want to read more about what a determined kid she is, don't forget to buy her book on Amazon!

 

Gotcha 


Saturday, February 11, 2017

E's finger Update

E had an injury to his finger prior to coming to the orphanage. It was badly scarred and mishapen but the Dr. at the international adoption clinic didn't seem concerned. She gave us fungus cream and said "the nail might fall off."

Well a few months ago E cut that same finger chopping apples and I took him for stitches. The dr at urgent care said his finger obviously had a bigger issue, so we were referred toa hand  surgeon. 

Two days later we had xrays and saw the bones in his finger were in two pieces. We scheduled  reconstructive surgery for December. 

Surgery went great and a pin was placed to hold the bone graft from his wrist. All was healing nicely till V smashed into it goofing around. E's finger was infected the next day and abscessed. After two weeks of antibiotics, the pin had to be removed. 

The infection is gone now but the bones couldn't heal well so he is going to be receiving a bone stimulator to use every day!

Hopefully my littpe guy will be as good as new by summer. He's had to be careful and not allowed to ride bikes or jump on the trampoline until he's healed up.  


 


 
 
 

Thursday, February 9, 2017

A brief update in pictures

 
Haircuts

Brickfest!
 






We adopted a cat from the shelter 






 
Gymnastics
 


Eli had surgery on his finger
 

 

A Letter to Betsy DeVos From A Special Needs Mom

A Letter To Betsy DeVos From A Special Needs Mom

This is the link to my newest article on The Mighty. Its probably not a popular opinion, but when has mine ever been? 😂

Wednesday, February 8, 2017

Gotcha!

I am so proud of Mariah!

As you saw in my previous post, she has been journaling in her Handwriting Without Tears and Dyslexia Games books. I encouraged her to put her stories together and write a book. She did just that! I helped some with scribing for her when her hand got tired, but she wrote a book with her words from her memories and experiences. It was such a great healing thing for her and I to do together. She desperately wanted to have her book published so people could read her story and understand more about Dyslexia, Cerebral Palsy, and International Adoption.

While searching for someone to publish her book, I found a way to publish it myself!

Here is her book, available in paperback and downloadable to Kindle from Amazon.



 

Sunday, January 15, 2017

Mariah needs a Publisher


Update! Someone shares with me how to publish to Amazon. Here is the Kindle Version of Mariah's book. So exciting!

Gotcha: An Adoption Story https://www.amazon.com/dp/B01MSBDAHA/ref=cm_sw_r_cp_api_Y9FIyb9GHCAA5


As anyone who has followed my blog for any amount of time knows, we have long had our struggles with the public schools refusing to accommodate our childrens' disabilities. Much of my more recent writing was to express this frustration to help raise awareness of the problem.

Since we decided to homeschool the children two years ago, I've mostly devoted my time to teaching and researching ways to further help my children at home. I've also become a writer for The Mighty, elaborating on certain aspects of what its like to live with disabilities.

Mariah has struggled with emotions related to living in an orphanage for the first four years of her life. She has also been incredibly frustrated by how she was treated while she was in public school. She felt singled out, different, and misunderstood.

I am so proud of her for wanting to write about her experiences. Owning your story is a huge part of the healing process. Mariah wants to "Be a famous author!" She has already written a lovely rendition  from her point of view about her life prior to being adopted, what it was like during the process and after she came home.

Mariah plans to write more books about the other disabilities she lives with so children can gain a better understanding of their differently abled peers. Some of her plans for future book titles include,

"I Have Dyslexia!"
"My Legs Aren't Broken, These Are AFOs."
"Kids Have Strokes Too"


Please help us share her video so we can find a publisher who'd like to "Make her a famous author!"





Click HERE to see Mariah's book on Shutterfly


We witness a miracle every time a child enters into life; but those who make their journey home across time and miles, growing within the hearts of those who wait to love them,are carried on the wings of destiny; and placed among us by God's very own hands. --Kristi Larson

 

ALL CONTENT IS COPYRIGHT AND MAY NOT BE COPIED OR REPRODUCED WITHOUT WRITTEN CONSENT OF THE AUTHOR. COPYRIGHT 2017